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The development of a supportive care needs assessment tool for Indigenous people with cancer

Garvey, Gail, Beesley, Vanessa L., Janda, Monica, Jacka, Catherine, Green, Adele C., O'Rourke, Peter and Valery, Patricia C. (2012). The development of a supportive care needs assessment tool for Indigenous people with cancer. BMC Cancer,12(300):1-10.

Document type: Journal Article
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Title The development of a supportive care needs assessment tool for Indigenous people with cancer
Author Garvey, Gail
Beesley, Vanessa L.
Janda, Monica
Jacka, Catherine
Green, Adele C.
O'Rourke, Peter
Valery, Patricia C.
Journal Name BMC Cancer
Publication Date 2012
Volume Number 12
Issue Number 300
ISSN 1471-2407   (check CDU catalogue  open catalogue search in new window)
Scopus ID 2-s2.0-84872674912
Start Page 1
End Page 10
Total Pages 10
Place of Publication United Kingdom
Publisher BioMed Central Ltd.
HERDC Category C1 - Journal Article (DIISR)
Abstract Background
Little is known about the supportive care needs of Indigenous people with cancer and to date, existing needs assessment tools have not considered cultural issues for this population. We aimed to adapt an existing supportive care needs assessment tool for use with Indigenous Australians with cancer.

Methods
Face-to-face interviews with Indigenous cancer patients (n = 29) and five focus groups with Indigenous key-informants (n = 23) were conducted to assess the face and content validity, cultural acceptability, utility and relevance of the Supportive Care Needs Survey - Short Form 34 (SCNS-SF34) for use with Indigenous patients with cancer.

Results
All items from the SCNS-SF34 were shortened and changed to use more appropriate language (e.g. the word 'anxiety' was substituted with 'worry'). Seven questions were omitted (e.g. items on death and future considerations) as they were deemed culturally inappropriate or irrelevant and 12 items were added (e.g. accessible transport). Optional instructions were added before the sexual items. The design and response format of the SCNS-SF34 was modified to make it easier to use for Indigenous cancer patients. Given the extensive modifications to the SCNS-SF34 and the liklihood of a different factor structure we consider this tool to be a new tool rather than a modification. The Supportive care needs assessment tool for Indigenous people (SCNAT-IP) shows promising face and content validity and will be useful in informing services where they need to direct their attention for these patients.

Conclusions
Indigenous people with cancer have language, customs and specific needs that are not accommodated within the standard SCNS-SF34. Our SCNAT-IP improves acceptability, relevance and face validity for Indigenous-specific concerns. Our SCNAT-IP will allow screening for supportive care needs that are specific to Indigenous cancer patients' and greatly inform targeted policy development and practice.
DOI http://dx.doi.org/10.1186/1471-2407-12-300   (check subscription with CDU E-Gateway service for CDU Staff and Students  check subscription with CDU E-Gateway in new window)


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