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The IMPAKT study: using qualitative research to explore the impact of end-stage kidney disease and its treatments on aboriginal and Torres Strait Islander Australians

Anderson, Kate, Cunningham, Joan, Devitt, Jeannie and Cass, Alan (2013). The IMPAKT study: using qualitative research to explore the impact of end-stage kidney disease and its treatments on aboriginal and Torres Strait Islander Australians. Kidney International Supplements,3:223-226.

Document type: Journal Article

IRMA ID 11035xPUB28
Title The IMPAKT study: using qualitative research to explore the impact of end-stage kidney disease and its treatments on aboriginal and Torres Strait Islander Australians
Author Anderson, Kate
Cunningham, Joan
Devitt, Jeannie
Cass, Alan
Journal Name Kidney International Supplements
Publication Date 2013
Volume Number 3
ISSN 2157-1724   (check CDU catalogue open catalogue search in new window)
Start Page 223
End Page 226
Total Pages 4
Place of Publication United States
Publisher Elsevier Inc.
HERDC Category C1 - Journal Article (DIISR)
Abstract Indigenous Australians suffer a disproportionate burden of kidney disease. Better understanding regarding how the disease and its treatments impact on indigenous patients, their families, and communities is important to provide effective services for this population. To investigate this issue, a large qualitative interview study was undertaken as part of the IMPAKT (IMProving Access to Kidney Transplants) research program. Indigenous (146) and non-indigenous (95) patients from nine hospital renal units and 17 associated dialysis satellite centers were interviewed. The study revealed that indigenous patients’ experience of dialysis is strongly mediated by the social and situational circumstances of this population—specifically living in regional and remote communities, relative youth, late referral to nephrology care, language differences between patients and health providers, and low literacy. The dialysis regimen required dislocation of patients from their support networks, a situation exacerbated by pervasive miscommunication with healthcare providers, and a commonly reported sense of isolation and alienation. The implications of these findings for service delivery models are discussed.
DOI http://dx.doi.org/10.1038/kisup.2013.19   (check subscription with CDU E-Gateway service for CDU Staff and Students  check subscription with CDU E-Gateway in new window)
 
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