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Community preferences for the allocation of deceased donor organs for transplantation: a focus group study

Irving, Michelle, Tong, Allison, Jan, Stephen, Wong, Germaine, Cass, Alan, Allen, Richard, Craig, J, Chadban, Steve, Rose, John and Howard, Kirsten (2013). Community preferences for the allocation of deceased donor organs for transplantation: a focus group study. Nephrology Dialysis Transplantation,28(8):2187-2193.

Document type: Journal Article

IRMA ID 11035xPUB41
Title Community preferences for the allocation of deceased donor organs for transplantation: a focus group study
Author Irving, Michelle
Tong, Allison
Jan, Stephen
Wong, Germaine
Cass, Alan
Allen, Richard
Craig, J
Chadban, Steve
Rose, John
Howard, Kirsten
Journal Name Nephrology Dialysis Transplantation
Publication Date 2013
Volume Number 28
Issue Number 8
ISSN 0931-0509   (check CDU catalogue open catalogue search in new window)
Scopus ID 2-s2.0-84884557039
Start Page 2187
End Page 2193
Total Pages 7
Place of Publication United Kingdom
Publisher Oxford University Press
HERDC Category C1 - Journal Article (DIISR)
Abstract BACKGROUND: Solid organ transplantation is the treatment of choice for those with organ failure, but suitable organs are a limited community resource. Little is known about community preferences for the allocation of those organs. We aimed to determine community preferences for organ allocation and reasons for their choices.

METHODS:
Participants were recruited from the community in four states in Australia. In focus groups, they identified and discussed attributes that they believed were important for allocating organs to potential recipients. Transcripts were analysed thematically.

RESULTS:
Thirteen focus groups with 114 participants were conducted. Four major themes emerged: (i) saving and improving the lives; (ii) lowering the risk of lost opportunities; (iii) fairness and (iv) accountability. While happy to discuss general principles, many were not comfortable making organ allocation decisions and were happy to defer to health professionals; this reticence tended to disappear when discussing the use of their own organs.

CONCLUSIONS:
Participants wanted to save as many lives as possible as well as lower the risk of lost opportunities for those on the waiting list by maximizing the chances of success of every donation. A rational utilitarian ethical model of organ allocation, therefore, appeared to be the dominant framework adopted by the community. Key considerations were compatibility, high chance of peri-operative survival and favouring those with positive lifestyle and self-management choices. Communication between the transplant community and general community about organ allocation could be undertaken to create trust and shared understanding, which may ultimately increase organ donation rates in the future.
DOI http://dx.doi.org/10.1093/ndt/gft208   (check subscription with CDU E-Gateway service for CDU Staff and Students  check subscription with CDU E-Gateway in new window)
 
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Created: Thu, 07 Aug 2014, 16:56:25 CST