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Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease

Valery, Patricia C., Powell, Elizabeth, Moses, Neta, Volk, Michael, McPhail, Steven M., Clark, Paul J. and Martin, Jennifer (2015). Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease. BMJ Open,5(4 - Article No. e007451).

Document type: Journal Article
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IRMA ID 11381xPUB108
NHMRC Grant No. FT100100511
1016432
Title Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease
Author Valery, Patricia C.
Powell, Elizabeth
Moses, Neta
Volk, Michael
McPhail, Steven M.
Clark, Paul J.
Martin, Jennifer
Journal Name BMJ Open
Publication Date 2015
Volume Number 5
Issue Number 4 - Article No. e007451
ISSN 2044-6055   (check CDU catalogue  open catalogue search in new window)
Scopus ID 2-s2.0-84929377622
Total Pages 15
Place of Publication United Kingdom
Publisher B M J Group
HERDC Category C1 - Journal Article (DIISR)
Abstract Objective People with chronic liver disease, particularly those with decompensated cirrhosis, experience several potentially debilitating complications that can have a significant impact on activities of daily living and quality of life. These impairments combined with the associated complex treatment mean that they are faced with specific and high levels of supportive care needs. We aimed to review reported perspectives, experiences and concerns of people with chronic liver disease worldwide. This information is necessary to guide development of policies around supportive needs screening tools and to enable prioritisation of support services for these patients.

Design
Systematic searches of PubMed, MEDLINE, CINAHL and PsycINFO from the earliest records until 19 September 2014. Data were extracted using standardised forms. A qualitative, descriptive approach was utilised to analyse and synthesise data.

Results
The initial search yielded 2598 reports: 26 studies reporting supportive care needs among patients with chronic liver disease were included, but few of them were patient-reported needs, none used a validated liver disease-specific supportive care need assessment instrument, and only three included patients with cirrhosis. Five key domains of supportive care needs were identified: informational or educational (eg, educational material, educational sessions), practical (eg, daily living), physical (eg, controlling pruritus and fatigue), patient care and support (eg, support groups), and psychological (eg, anxiety, sadness).

Conclusions
While several key domains of supportive care needs were identified, most studies included hepatitis patients. There is a paucity of literature describing the supportive care needs of the chronic liver disease population likely to have the most needs—namely those with cirrhosis. Assessing the supportive care needs of people with chronic liver disease have potential utility in clinical practice for facilitating timely referrals to support services.
DOI http://dx.doi.org/10.1136/bmjopen-2014-007451   (check subscription with CDU E-Gateway service for CDU Staff and Students  check subscription with CDU E-Gateway in new window)
Additional Notes This is an Open Access article distributed under the terms of the Creative Commons Attribution License 4.0, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Description for Link Link to CC Attribution 4.0 License
URL https://creativecommons.org/licenses/by/4.0/au


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