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Research Priorities in CKD: Report of a National Workshop Conducted in Australia

Tong, Allison, Crowe, Sally, Chando, Shingisai, Cass, Alan, Chadban, Steve J., Chapman, Jeremy R., Gallagher, Martin, Hawley, Carmel M., Hill, Sophie, Howard, Kirsten, Johnson, David W., Kerr, Peter G., McKenzie, Anne, Parker, David, Perkovic, Vlado, Polkinghorne, Kevan R., Pollock, Carol, Strippoli, Giovanni F.M., Tugwell, Peter and Walker, Rowan G. (2015). Research Priorities in CKD: Report of a National Workshop Conducted in Australia. American Journal of Kidney Diseases,66(2):212-222.

Document type: Journal Article
Citation counts: Altmetric Score Altmetric Score is 7
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IRMA ID 75039815xPUB936
Title Research Priorities in CKD: Report of a National Workshop Conducted in Australia
Author Tong, Allison
Crowe, Sally
Chando, Shingisai
Cass, Alan
Chadban, Steve J.
Chapman, Jeremy R.
Gallagher, Martin
Hawley, Carmel M.
Hill, Sophie
Howard, Kirsten
Johnson, David W.
Kerr, Peter G.
McKenzie, Anne
Parker, David
Perkovic, Vlado
Polkinghorne, Kevan R.
Pollock, Carol
Strippoli, Giovanni F.M.
Tugwell, Peter
Walker, Rowan G.
Journal Name American Journal of Kidney Diseases
Publication Date 2015
Volume Number 66
Issue Number 2
ISSN 0272-6386   (check CDU catalogue open catalogue search in new window)
Scopus ID 2-s2.0-84937966937
Start Page 212
End Page 222
Total Pages 11
Place of Publication United States
Publisher W.B. Saunders Co.
HERDC Category C1 - Journal Article (DIISR)
Abstract Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n = 23), nephrologists/surgeons (n = 16), nurses (n = 8), caregivers (n = 7), and allied health professionals and researchers (n = 4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non–dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.

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